Kind, cute, and cuddly
Inquisitively curious
Tail twitching to and fro
Tauntly creeping in stealth mode
Energetic and acrobatic
Nighttime pouncer: beware!!
Well it is one day past Sunday but I am determined to make a trip around the blogosphere and see what interesting things that talented bloggers are blogging about. As I travel on today, I am finding some insightful and practical sites which provided helpful tips and encouragement in the art of blogging, nature photography, poetry, and encouragement.
The Art of Blogging:
Some great blogging tips and ideas from Hugh’s News and Views:
http://hughsviewsandnews.com/2014/10/23/an-insiders-guide-to-planet-blog/
Apparently there was such a great response to this very helpful blogging tip article that Hugh’s News and Views posted a second installment:
http://hughsviewsandnews.com/2014/10/27/more-blogging-tips-from-the-insider-on-planet-blog/
Nature Photography and Poetry:
I also found some wonderful photography illustrated with beautiful poetry by Leaf and Twig:
http://leafandtwig.wordpress.com/2014/10/26/color-is-the-light/
And more beautiful poems posted Forgotten Meadows:
http://forgottenmeadows.wordpress.com/2014/10/25/lullaby-2/
http://forgottenmeadows.wordpress.com/2014/05/25/chasing-clouds/
Inspirational Poetry and Encouragement:
Here is a deep, heart-touching poem by Christian Blessings:
http://ptl2010.com/2014/10/27/he-lifts-us-up-can-these-bones-live-have-you-ever-felt-so-broken/
And here is some inspirational encouragement that is sure to boost your spirits today posted by ANGELMD45:
http://angelmd45.wordpress.com/2014/10/21/you-are-a-materpiece/
I hope you find something in this post that encourages and lifts you up today.
Time frame: late 1980’s. While attending college in Minnesota I embarked on a quest to find my cousin, Kathy whom I last seen at age 10. I had told my roommate about her and she encouraged me to try to find her. We last saw each other when we were 10 years old. When we were five, my mother took a photo of us in the kitchen. When we were 10, we visited on the front lawn on a warm summer evening and I piled kittens on her lap. I thought those kittens were so cute but I am not sure she liked having them all on top of her. While I grew up on a farm in Wisconsin, Kathy lived in southern California. Kathy’s parents divorced when she was 11; she could not return to visit her Wisconsin relatives. She also couldn’t travel easily because she had cerebral palsy and used a wheelchair. My immediate family never traveled as far as California. We lost contact with Kathy during the years following the divorce. Although I only met my cousin just a few times in my life, I often wondered about her.
Determined to find Kathy, I met with my grandmother who had written her occasionally and she had written her. But, time again passed so my grandmother could only give me Kathy’s last known address. To make things more complicated, my cousin had married acquiring a different last name. My grandmother couldn’t remember her new last name. Not wanting to give up, I wrote Kathy a heart-felt letter using the wrong address and the wrong name mailing it with a stamp and a sincere prayer. I needed to believe that God would answer my prayer.
Weeks and even a month passed. One day, I arrived at my apartment and found a letter from California. The return address contained an unfamiliar last name but as soon as I saw “Kathy”, I knew it was from my cousin. I could hardly believe it. Eagerly, I opened the letter and found that Kathy had poured out her soul in that long, detailed letter. She described some incredible events in her life. She unexpectedly gave birth to a baby girl.
A number of doctors told her that she couldn’t get pregnant. Sometime later, Kathy began experiencing extreme pain and was taken to an urgent care clinic. She was misdiagnosed as having a kidney stone or a bladder infection. The very next day and while on medication for a bladder infection, she returned to the clinic due to increasing pain. She was in labor and was rushed to the hospital by ambulance. Kathy and her husband were shocked, amazed, and overjoyed giving thanks to God for the unexpected and miraculous birth of their daughter, Kristie.
Later Kathy told me that she and her husband tried to revisit her urgent care doctor who had misdiagnosed her. With her newborn daughter in her arms, Kathy wanted to show him her beautiful “kidney stone.” They were promptly told that the doctor was no longer at that clinic. Can you imagine the shock and surprise of everyone in that waiting room?
I wrote again and we began corresponding; by letter and by phone. We became more than cousins but friends who could talk about anything. While Kathy told me about her married life and cute stories of her young daughter, I told her about my job working with adults with developmental disabilities, family in Wisconsin, and my personal life. We shared about our common faith in Jesus. While Kathy had married, I had remained single which enabled me to do some limited traveling taking in time and limited budget considerations. At this point though, most of my solo journeys were short excursions to Wisconsin to visit family and friends. I had made occasional trips to Iowa too. Like I said, limited traveling.
Several years later, Kathy invited me to visit her in California and I was terrified, “I actually have to get on a plane?” Later and with lingering fear I was up for the adventure of traveling cross country. My first journey to San Diego was a direct flight taking about a three and half hours across mostly sunny skies; I watched from my window the changing view of cities, forests, and mountains. Farms resembled quilt blocks of grassland and crop fields.
When the jet journeyed downward, the rising topaz-tinted desert appeared on one side of the plane and the deep-blue ocean on my side. Sun rays brightened the clear sky and glimmered on the ocean’s surface making the scene sparkle like a sapphire gem. This picturesque view showed me God was there and was blessing my journey. Apprehensive though, I braced for the final approach as the jet glided towards land and jolted as it touched ground.
At the airport gate, I gathered my belongings, and walked through a curving tunnel. With nervousness, I rounded the last corner stepping into the terminal. The afternoon sun glistened through the airport’s vaulted windows and in the midst of a blinding glow; I glimpsed my cousin in her wheelchair. After 17 years we had reunited. I hurried to give Kathy the warmest hug I could.
“Welcome cousin,” she said in such a warm voice that I forgot my shyness. Kathy, a sensitive and loving person and we soon felt like sisters and even best friends. During this visit I became acquainted with Kathy’s husband and daughter. While I visited that first time, we managed to visit both Disneyland and SeaWorld. Surprisingly, Disneyland was a disappointment especially for Kathy. Many exhibits and attractions would advertise that they were “handicap accessible” but they really weren’t so; at least not for someone who is in a wheelchair. We did find one interesting attraction that was truly accessible; the Mark Twain Steamboat ride. Kathy was easily able to maneuver onto the boat and find a safe place to park her chair. We all enjoyed the gentle and scenic excursion along their makeshift “Mississippi River”.
SeaWorld proved to be more interesting as all wildlife exhibits and presentations there were truly accessible for Kathy; this made our visit much more enjoyable for all. While there we saw two orca whales, Shamu and Baby Shamu who we learned was just a few weeks old. We could see Mother Shamu teaching Baby to swim and turn in the large pool. Another highlight was seeing the splashing, playful dolphins. As I held onto my four year old cousin, Kristie, one eager dolphin flew in to water to our side showering us in a huge spray of water. My little cousin was soaked from head to toe but she delightedly reached out to pet the friendly animal.
This one visit turned into many. We went on adventures together forging new memories and deepening our relationship. We also shared bus-related misadventures and trips to the beach on warm, sunny days. In one bus related mishap, Kathy was stuck, mid-air, on a broken bus lift and we waited hours under a steamy summer sun for her to be rescued. In another misadventure, we boarded the wrong city bus but did not realize this until the bus turned onto Eucalyptus Street heading in the wrong direction. We then got off the bus as soon as we could and endured a long walk home in the dark as no more buses were available that late in the day.
Also taxis were not an option as I was not strong enough to transfer Kathy into a car seat. During this time, accessible transportation options for my cousin were very limited. To keep ourselves calm, we kept up a steady conversation and prayed for God to keep us safe. Today, I don’t remember what our conversation entailed; I just remember the long walk along those California streets in the darkness like venturing through a dimly lit and unfamiliar tunnel. Also, Kathy at this point used a manual wheelchair so I pushed her along until we were safely home. I have no doubt that Jesus was watching over us during that journey in the darkness.
Some years later, we camped on Mount Palomar where the sun-filtering forest surrounded us like a colorful, woven blanket handmade by God; it was a quiet refuge from the demanding world far below us. We basked in nature’s peacefulness venturing through the woods, picnicking, and relaxing around a campfire. We visited Mount Palomar Observatory and stayed up late looking through large telescopes, set up in a mountain meadow, to view stars, planets and nebulas. Kathy’s husband and I took turns pushing Kathy’s wheelchair through the long grass so she could gaze through as many telescopes as she wanted. It was a special evening of admiring God’s glowing creations, glittering like jewels embedded in the deep night sky.
The tranquil, emerald-colored mountain was a vivid contrast to the traffic-filled streets, and the sun-scorched climate of Kathy’s everyday life. Years later, she and her family moved to Washington State where they’re amid perpetual greenery. Kathy’s daughter, Kristie, who is an artist and nature lover often shoots photos depicting nature’s inspiring beauty. She once asked me, “Do you remember how green it was on Mount Palomar? Well, it’s like that here but it’s everywhere.” The experience of Mount Palomar affected us all and remained a cherished memory in our hearts.
Over the years we’ve persevered through life’s heartaches and disappointments praying and encouraging each other. In the same year, Kathy’s father passed away, my mother unexpectedly died; together we faced each family holiday with grieving hearts and feeling the emptiness of our parents being gone too soon.
We also encouraged each other in new aspirations. In recent years, Kathy, growing in confidence and a desire to do more in her life, took on the tasks of completing her college degree and exploring professional work opportunities. We both embraced academic challenges and will often challenge each other in trivia and word games.
Several summers ago, I visited Kathy in her Washington home and we again indulged our adventurous spirits by hiking around woodsy Lake Padden. It was a long, winding journey with a paved trail circling the shimmering lake. The thick green forest surrounded us like a warm and familiar cloak. I instantly remembered Mount Palomar. Kathy now used a motorized wheelchair and could easily propel herself up and down the sloping hills of that curving trail. However, I worried about the battery losing its charge as we wandered along. This had happened before with one of Kathy’s previous motorized chairs. Thankfully, that had been a lighter wheelchair; I just needed to switch the gears to manual and push her home.
But now if that battery died, I realized I wouldn’t be able to push her back home again. Not this time as the chair was much heavier. But Kathy knew her wheelchair and her battery readings better than I; she was confident and eager to continue our trek. We finished our journey and with a beaming smile, she exclaimed, “That was my first rolling hike.”
When I think of Kathy and the friendship we share, I am reminded of God’s words about treasures in heaven when in Matthew 6:20-21 of the Holy Bible we are told, “but lay up for yourselves treasures in heaven, where neither moth nor rust destroy and where thieves do not break in and steal. For where your treasure is there your heart will also be”. I went on a quest to find a lost cousin. In return, I had found a new sister and a lifelong friend. Kathy’s friendship is an unseen treasure granted from heaven and a precious gift instilled in my heart.
How often I think “today is too hard” or “today is too long.” For me, Thursdays are very long. Just yesterday, I was helping a gentleman with some grocery shopping. He was the last person on my schedule and it had already been a long day of helping people with meals, exercising, household tasks, checking medications, and completing special errands. We went shopping as planned. His list of needed items was not that long but he really likes to take his time spending five to ten minutes choosing each item. Today, he seemed to take longer than usual. I am very tired from the long day I already had endured and now was growing frustrated that it was about to become much longer than I originally thought.
I try to politely encourage him to make his selections a little faster but that didn’t work. Then I tried setting a time limit saying that we needed to be checking out of the store by a certain time. He moved along a little faster but not by much. He enjoys looking around the store and does not want to be rushed. The more I tried to hurry him along, the more he deliberately slowed down! So, although I am very tired and very anxious to be done for the day, I slow down too letting him take as much time as he wanted. As we went along, I’d quietly pray asking God to give me his gentleness, calmness and patience I needed to finish this day. We finally made it home where i help him prepare supper and he completes a few more tasks for the day. And I thought, “this day was too long!” But really, it wasn’t.
Because God was with me the entire time helping me as I helped others all day long. Sometimes I look at the day and think, “This is too much!” But when I just concentrate on a small part of the day and so break the day into small steps then it becomes more doable. And often that is what God wants me to do. Just look along my daily , windy, path one corner at a time and my journey will end in God’s planned time. And in God’s good time, I am able to rest before facing another day, another journey with Jesus leading the way. In this manner, God makes my yoke lighter as I learn from him and let him lead me. As I contemplated on this, the words of Jesus in Matthew 11 came to me:
Matthew 11:28-30 (Holy Bible English Standard Version):
“Come to me all who labor and are heavy laden and I will give you rest. Take my yoke upon you and learn from me for I am gentle and lowly in heart and you will find rest for your souls. For my yoke is easy and my burden is light.”
At times, I feel a sense of rejection and also failure. I find this in relationships, sometimes at work, and in my endeavors to be a writer. Many times this is because I have made an error or fall to sin. Other times it is because others only see my outward appearance and my outward actions without understanding my heart or my thoughts. And often the world will only see what it wants to see, remain unkind, and not seek understanding. I know there others who may feel that way too. Only God can see us on the inside. Only God can understand the depths of our thoughts and our hearts and in God’s lovely eyes we are accepted into his infinite love. God can see what others cannot see; God can see the beauty hidden deep inside of you and me.
I Samuel 16:7b (Holy Bible English Standard Version):
“For the Lord sees not as man sees: man looks on the outside appearance but the Lord looks on the heart.”
The Tree’s Four Seasons
Spring brings new, gleaming green life to the bare and lonely tree,
The tree waves in the gentler wind, happy as the leaves bud free,
Summer brings the sun which shines on its beautiful carpet of leaves,
Autumn brings the most brilliant yellows, reds, and pumpkin oranges
Just before the mean winds of November come to blow causing the glorious leaves to tumble,
Rakes and blowers noisily and greedily scoop up the beauty as people grumble,
All winter long, the tree is bare and lonely without its friends, its precious leaves,
It may even lose a few of its limbs as the ice and snow weighs the sad tree down,
The tree awaits the promise of warmer days, and the bird’s song, hurry Spring,
So the leaves will once again cover it happily, like a gorgeous green gown.
Okay, it is no longer Sunday so I am three days late on my Sunday Drive Roundup but I am determined to make that drive around the blogosphere!! As I do so, I am finding some very interesting posts by other very talented and inspirational bloggers. This week I am finding interesting posts in photography, poetry, and a bit of humor that really caught my eye!!
Photography
First off, I will start with some very beautiful and artistic photography:
Here is a breathtaking photo of the Grand Canyon taken by NJ Corporate Portraits:
http://rjgreenphoto.wordpress.com/2014/10/15/sunrise-2/
Here is also a vivid reminder that the beautiful season of autumn is here by Leaf and Twig:
http://leafandtwig.wordpress.com/2014/10/14/red-dress/
Acronym Poetry:
I am also finding some inspirational acronym poetry which I find very interesting:
Here is a very cute photo and thought provoking poem by Source of Inspiration:
http://patcegan.wordpress.com/2014/10/15/make-a-wish/#comment-34453
Another acronym poem bay Source of Inspiration which reminds me it is okay to let the child in me to come out and enjoy the life that God has given me:
http://patcegan.wordpress.com/2014/10/15/hopscotch/
And a Bit of Humor:
I also found this cute and humorous one liner by LOVE HAPPY NOTES:
http://lovehappynotes.com/2014/10/15/joke/
So there you are, my latest Sunday Drive Roundup three days late!! I hope you find something here that inspires you and makes you smile today.
My wonderful cousin Kathy has been busy writing again. Today she is sharing a very special story of what life is like in her shoes. I feel this is a very important story because all of us who do not need a wheelchair really have no idea how life can be so different than what we know. From getting up for the day, arranging transportation,and finally getting out the door, just a quick trip to a grocery store or a doctor appointment can turn into an all day event for her. And that is just one small example of how her life is so different from mine.
What strikes me about her is how she deals with so much and is determined to remain kind and gracious through it all. As Kathy journeys through her daily life she often meets up with individuals who really lack understanding of her situation and it’s unique challenges. This includes, sadly, counselors and other professionals who ought to know and be more compassionate and understanding. Kathy in her own quiet way would kindly try to explain her unique situation but that didn’t always help. She would be searching for kindness and understanding from others and not receive it. Now, she decided to write about it and share her story with us. I hope you enjoy reading and learning from her perspective in daily life:
Rolling in My Shoes
Most infants born in 1964 did not make it if they were over two months early. There were no such things as neonatal intensive care units or drugs to help the development of the lungs even after birth. To put it into perspective, a baby boy who was born the same day as me, but he died; yet, he was only six weeks early. Today, preterm babies born at either of these stages of pregnancy may not have any sign of disability at all. However, fifty years ago, I went into respiratory distress at six days of age. I never moved my legs inside the incubator again. Prior to this, I had been extremely active inside my glass cocoon. Procedures were so different then that my parents were not allowed to interact with me at all. I could not even hear their voices, let alone feel their arms holding me. In fact, I knew no human touch at all until I was ready to come home six weeks later. At that point, I was almost five pounds, and the hospital nursery was full of infants. That period of history between 1946 and 1964 became known as the baby boom generation, so my parents were allowed to bring me home sooner than they would have otherwise.
My parents were told that I would be behind in my developmental milestones by about three months compared to other full term infants of my age. Surprisingly, I met my milestones at the same time as other babies. I even said “Da Da” at about five months old. Mom noticed however, that I was not trying to roll over or sit up. When she tried to sit me up, I would topple over immediately. At about nine months old, I was diagnosed with Cerebral Palsy. How frightened my parents must have been as my future became suddenly very much up in the air. All they could do was wait to see I could and could not do for myself.
Cerebral palsy is also referred to as CP, is a term used to describe a collection of chronic conditions affecting body movement and muscle coordination. It is caused by damage to one or more particular sections of the brain. This usually occurs during pregnancy; before, during, or shortly after birth; or during infancy. These conditions are not caused by problems in the muscles or nerves. Instead, it is caused by the defective development or damage to the motor areas in the brain; this defect disturbs the brain’s ability to control movement and posture (how well one sits or stands upright). Cerebral Palsy is also known as a developmental delay and/or disability.
I have the most common type of CP called spastic CP. This causes me to have too much tone or stiffness in the muscles. I also have mild tremors in the legs and feet. While some people walk with an uneven gait, I have little ability to maintain my balance, so I use a power chair. This means that I need help with some Activities of Daily Life, (ADL’s); these include getting in and out of bed, dressing, showering, and toileting. I also need help with some Instrumental Activities of Daily of Daily Life or (IADL’s). These are more complex skills of living. In my case, I need help with shopping, public transit, home chores, cooking and medication management.
Caregivers assist me to have the best quality of life possible. I have had to learn some patience; it is not always easy to exercise patience especially when I am in a hurry to accomplish something. My husband is my primary caregiver; he has known me since I was a teenager. One of the most important life lessons occurred to me not long ago. Grace has to be an important part of my life. In order for people to want to help me, I must show appreciation to those who go out of their way to do so. It takes a great deal of grace and empathy to give and receive help; it is very much a reciprocal relationship. I pray for those who deal with me on a professional level that they would have some compassion for my circumstances and realize that my circumstances are at times imperfect.
There are extra challenges in rolling in my shoes! Have you ever noticed the sidewalks that suddenly end, causing me to go the long way around to get to my destination? What may take someone less than an hour to visit the store may well take me most of the day! Busses or specialized transport may take hours, just to pick me up and drop me off depending on the schedule. Yet, I am usually less than a fifteen minute drive away from home. Don’t get me wrong; I am very glad to have access to these services, but there may be valid reasons why I may I not smell as fresh as a daisy or I may dress for warmth and comfort rather than dressed up for the office. How does a person like me get a complete medical examination when I am unable to put myself on the exam table? I have a Hoyer lift at home, but I am not allowed to bring it on public transport; it is far too big and top-heavy to be safely transported. It becomes a liability issue. The hospital is often my only option for a more complex exam. All of these issues require planning ahead and good time management. Next time, you encounter someone with a disability, please do not criticize him or her, and bless him or her by offering some compassionate grace!
A day in my life contains little spontaneity; as much as I would love to just decide to do something at the spur of the moment, it is rarely possible. Most of my day follows an outline of a plan. This is not to say that every moment is scheduled, but if I want to do something more than a mile or so from my home, I have to usually plan for it. The reason for this is the rather limited battery and speed of my power chair. At top rabbit speed, it only goes at six mph. After going a few miles, the battery loses power quickly. As much as I love my chair and the independence it allows me to have, the chair is very heavy – about 3-400 lbs. without me in it. This means that it an exceptionally strong person to push it more than a few feet after the pusher puts it into manual drive. This totally disengages the power, and it is up to the not so lucky person to push it. Fortunately, it has never broken down outside my home, although it is a fear of mine because there is no Triple A for people in chairs.
As I explained earlier, I also need help to get up and get cleaned up for the day. Often, I need a shower. My caregiver and or my husband use the patient lift to transfer me from the bed to the shower chair. My helper(s) push me into the bathroom, attaching the shower chair to the gliding system. One lifts my legs over the side of the tub while the other slides the chair and me over into the tub. Once the shower is done, the wet sling has to be exchanged for a dry one, and the lift is used to transfer me onto the bed. This is where I get dressed for the day and my catheter is tended to etc. This entire process takes about an hour including using the lift again to place me in the chair.
If I have a scheduled appointment, our disabled transportation system requires me to be ready an hour before my appointment time, longer if I have to go outside of my city. Once I complete my appointment, I have to call the dispatcher to pick me up once again. This could take up to another hour. According to their schedule, there is often others to pick up or drop off on the way home. It is often faster to take the fixed route bus home! But I do run the risk of others in wheelchairs already using the allocated spaces. If this happens, it really puts me behind. I have to plan to leave with time to spare in case I get held up for any reason, even a late bus. Sometimes, my incontinence becomes an issue, especially if I get delayed at all. I take steps to minimize the risk, but there are times it cannot be helped.
My life and well-being depend very much on the reliability of others. However, I am luckier than most in my shoes because my husband is usually available to pick up the slack if a caregiver cannot be with me. Knowing that my success as well as my good health relies so much on others is not easy for me. Good and empathetic caregivers are as difficult to find as gold nuggets. Low pay and burnout are frequent problems. Due to tight budgets, aging baby boomers and the fact that people are living about thirty years longer than they were 100 years ago, this will most likely continue to be a problem for decades to come unless solutions can be found. However, that is a topic for another day.
Setting a Life to Words
Finding God's Grace in a Lemon-filled World
Prose | Poetry | Fiction | Editing
Writing - Loving What I Do and Doing What I Love!
Warning: A feminist writes here. Content may contain angry, vulgar, and sometimes funny language.
Join Us for #TankaTuesday 短歌 火曜
I no longer live, but Christ lives in me. Gal. 2:20
thoughts from my mind to yours
A little bit of this and that
THE WOMAN WITH WHEELS
Thoughts from the Heartland
the joy of creativity
The details of my Journey.
Inspiration through my thoughts, experiences and travels
All information not in hand belongs on a bookshelf
~ Communicator, WordSmith, Artist, Guide, Mentor, Muse ~
I write because I read. I read because I write.
Christian poetry and prose, quotes, and thoughts - if they glorify God they were worth writing; if they mean something to one other person, they were worth sharing. Comments always welcome!
Setting a Life to Words
Finding God's Grace in a Lemon-filled World
Prose | Poetry | Fiction | Editing
Writing - Loving What I Do and Doing What I Love!
Warning: A feminist writes here. Content may contain angry, vulgar, and sometimes funny language.
Join Us for #TankaTuesday 短歌 火曜
I no longer live, but Christ lives in me. Gal. 2:20
thoughts from my mind to yours
A little bit of this and that
THE WOMAN WITH WHEELS
Thoughts from the Heartland
the joy of creativity
The details of my Journey.
Inspiration through my thoughts, experiences and travels
All information not in hand belongs on a bookshelf
~ Communicator, WordSmith, Artist, Guide, Mentor, Muse ~
I write because I read. I read because I write.
Christian poetry and prose, quotes, and thoughts - if they glorify God they were worth writing; if they mean something to one other person, they were worth sharing. Comments always welcome!